It’s Like A Boomerang, You Think It’s Gone Then It Come Right Back
On June 13th I was surrounded by peers affected
by similar, if not the same, disease at the CCFA Walk to Cure Crohn’s and
Ulcerative Colitis. At the beginning of the walk a dad was on stage talking
about how hard it is, as a parent, to watch your child suffer with an incurable
disease. At that point I noticed my mom nodding her head and I looked at her
and whole-heartedly apologized for putting her and dad through that. Two weeks
later I had a procedure that would reveal that my Ulcerative Colitis was active
again.
Every part of me wishes I could give some kind of word of
wisdom, but I can’t. I’m at a loss. I thought I was healthy. I thought maybe I
beat this. The reality is that I always knew this disease would come back, but
only four years after transplant? Only two years narcotic free! That’s just not
fair. It’s taken me weeks to be able to write this because I wasn’t ready to
accept it. Hell, I’m still not ready to accept it.
I always say, no one is in it alone. I guess its time I take
my own advice, grit my teeth, bow my head, and get through this. This time
around I know I’m not alone and I don’t have to be afraid to be weak, or
scared, or just utterly frustrated. This time I’m not going to try to do it
alone, I’m going to trust that the people in my life are going to be there for
the long haul. That, after everything they’ve already been through, they’ll
stick by me through this one too. I’ll keep reminding myself, this one isn’t a
death sentence. I know what is coming, this time I’ll be prepared. With my
support system, I’ll get through this one too.
I’m not going to lie and say I’m ready; I’m going to
realistic and prepare myself for the worst while always hoping for the best.
I’m not going to let this control me, not this time. I’m going to be as normal as
I’ve ever been, this won’t beat me!
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